a group of consortium members who are responsible for overseeing organizational business on behalf of all members.

established and independent scientists actively participating in the research endeavors/activities of the IRC⁵. A consortium member contributes substantive data, resources or expertise and regularly contributes to the IRC⁵ shared database and to the activities of one or more working groups. Consortium members can invite their affiliates to participate in working group activities as appropriate.  Consortium members are expected to attend the IRC⁵ annual meeting in person (at least once every three years).  Consortium members will have access to the inventory of all data available in the IRC⁵ consortium database.

individuals who contribute to the IRC⁵ but are not yet consortium members. They include staff and students of consortium members and associated scientists, clinicians and allied health researchers.  Affiliates may engage in some or all of the following activities: participate in a working group, contribute data, research participants; clinical or scientific expertise, other resources important for IRC⁵.

a group of individuals who provide professional assistance and advice for organizational and scientific pursuits of IRC⁵.  Includes 3 committees:

• Scientific Advisory Committee – Expert scientists not members of IRC⁵
• Consumer Advisory Committee – Includes people from areas of clinical and professional care of effected individuals, patient groups and industry partners.  A representative from each family organization.
• Fundraising Committee – Individuals with professional expertise relevant to functions of the organization

a group of individuals who provide professional assistance and advice for organizational and scientific pursuits of IRC⁵.  Includes 3 committees:

• Scientific Advisory Committee – Expert scientists not members of IRC⁵
• Consumer Advisory Committee – Includes people from areas of clinical and professional care of effected individuals, patient groups and industry partners.  A representative from each family organization.
• Fundraising Committee – Individuals with professional expertise relevant to functions of the organization

individuals and organizations who offer support to IRC⁵ (financial and otherwise).  The following family support organizations are invited to maintain a representative on the Consumer Advisory Committee:  AusDoCC,  Corpal,  NODCC.

• These groups are under development.