Governance Board (Directors)

a group of consortium members who define in writing the limits on the operational means and monitors previously created policies.

*Consortium Researchers

scientists who are actively involved in IRC5 research endeavours & participate in at least one working group. Includes:

  • All Directors
  • Scientific contributors and collaborators of the IRC5 who are not currently on the Governance Board  (these individuals have no voting rights in the Corporation)

*Affiliates

professionals who contribute to database but are not involved in setting the research direction or governance of IRC5.  Includes:

  • Laboratory personnel of IRC5 members
  • Study coordinators of laboratories represented in IRC5
  • Clinicians who contribute data

*External Advisory  Board

a group of individuals who provide professional assistance and advice for organizational and scientific pursuits of IRC5.  Includes 3 committees:

  • Scientific Advisory Committee – Expert scientists not members of IRC5
  • Consumer Advisory Committee – Includes people from areas of clinical and professional care of effected individuals, patient groups and industry partners.  A representative from each family organization.
  • Fundraising Committee – Individuals with professional expertise relevant to functions of the organization

*Friends of IRC5

individuals and organizations who offer support to IRC5 (financial and otherwise).  The following family support organizations are invited to maintain a representative on the Consumer Advisory Committee:  AusDoCCCorpalNODCC.

  • These groups are under development.